Yesterday Reagan was supposed to have the barium swallow study done. After holding off her feeds for nearly 12 hours they cancelled the study. The radiologist had called up during the doctors rounds on her and said that they would not do the test. When the doctors asked why not, the Radiologist said its because they can't thicken the barium to be as thick as honey and now that it is documented that she aspirates she can't have anything that's not as thick as honey. When the ICU doctor asked if it could be thickened even a little they said no. So her team of doctors decided that the risks outweigh the benefits and they wanted her to have the study done even if they couldn't thicken it. The radiologist still refused to do the study. They are still working on getting that study done, the ICU docs and ENT teams are ganging up on the radiologist to get the study done.
Last night she had the EEG removed, no words on those results yet.
She met the GI fellow last night who was fantastic. He reassured me that the most important thing we can do is to keep her safe, so she doesn't have another event like Sunday night. He said that all her doctors will work together to ensure that before they send her home.
Here are some pics of the princess, who is also the most popular kid on the unit. Some say she is even the cutest kid in the hospital. Talk about making a momma proud.
Getting the EEG removed, FINALLY!
The EEG technician said there were probably about 25 wires connected to her head!
She is in good spirits today! The ICU team is trying to figure out what her other providers want for testing before we go into the weekend. I'll post as I find out information.
And hopefully no news is good news!
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